tag:blogger.com,1999:blog-32053362.post5668254129298948019..comments2024-03-26T00:25:34.026-04:00Comments on Not Running a Hospital: Helping patient-run organizationsPaul Levyhttp://www.blogger.com/profile/17065446378970179507noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-32053362.post-90131366637055912852010-07-30T22:26:44.586-04:002010-07-30T22:26:44.586-04:00btw, a year before "patient in chief" I ...btw, a year before "patient in chief" I proposed a patients speakers bureau, so conference organizers have somewhere to turn.<br /><br />It would need to have the usual bureau features: ensuring quality, understanding each speaker's unique "schtick," etc. Perhaps that's something an umbrella organization could provide.<br /><br />(I looked for an existing speaker's bureau on the IHI site and didn't see one.)e-Patient Davehttps://www.blogger.com/profile/10346452642450264511noreply@blogger.comtag:blogger.com,1999:blog-32053362.post-3456632585449462102010-07-30T22:07:05.358-04:002010-07-30T22:07:05.358-04:00I'm gob-smacked. Completely floored. Wonderful...I'm gob-smacked. Completely floored. Wonderful.<br /><br />And here's the next challenge for you wonderful people - and I mean it, think about this: what about the lost pay these people sacrifice from their day jobs in order to attend?<br /><br />In my <a href="http://e-patients.net/archives/2010/01/patient-in-chief.html" rel="nofollow">Why America needs a patient-in-chief</a> post, I said "It’s doubly ironic because the most motivated patients, the ones with the most at stake (and most educated), are most likely to have financial stress – thus least likely to be able to “take a few days off” to go help in DC."<br /><br />Again, this is a wonderful initiative. And I urge all the wonderful supporters to kick it up a notch and make it actually <i>work</i> for the patients to come... by fully understanding how affected their lives are by the challenge of participating in change.<br /><br />Thanks again. This is starting to get really patient-centered.e-Patient Davehttps://www.blogger.com/profile/10346452642450264511noreply@blogger.comtag:blogger.com,1999:blog-32053362.post-27855065364352668792010-07-30T17:09:26.301-04:002010-07-30T17:09:26.301-04:00I have been reading your blog and am sending you a...I have been reading your blog and am sending you an article written by Ted Ball called Disruptive Innovation: Patient/Family-focused Care. He writes about how challenging it is to change the current culture in healthcare and how the drive must come from patients and families. I think that this can only happen if we let patients/families into our "private club" and thus I find IHI's idea to involve them in its Annual Forum is brilliant.<br /><br />Please feel free to share with your readers. http://www.longwoods.com/content/21879<br /><br />Sincerely,<br /><br />Louise Fullerton RN MSc(A)<br />Clinical Nurse Specialist - Critical Care<br />McGill University Health CentreLouisenoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-6834859953322331772010-07-30T11:16:49.219-04:002010-07-30T11:16:49.219-04:00From Facebook:
Many thanks to you for this post.From Facebook:<br /><br />Many thanks to you for this post.Jeninoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-15912048966146466212010-07-30T11:16:10.463-04:002010-07-30T11:16:10.463-04:00IHI is making up the list. Please contact Sara if...IHI is making up the list. Please contact Sara if you have suggestions.<br /><br />On your other question, things are fluid right now. We will be seeking the advice of the people attending. I doubt people would want to give up independence and have that strong an umbrella group, but we are guessing that many would welcome some kind of support organization. Let's see what develops!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-39238896547460721902010-07-29T23:26:25.439-04:002010-07-29T23:26:25.439-04:00How will the 35-50 patient advocates be selected i...How will the 35-50 patient advocates be selected if your efforts to raise money are successful? <br />I think this is a great idea. I am working in the area of maternal care safety and quality and know many folks who would like to be an advocate but haven't started their own organization. I don't think it's such a great idea to have so many individual organizations either. Is the idea to have some umbrella group within IHI for folks who don't start their own organization? Thanks for your efforts.Christinehttps://www.blogger.com/profile/14023297630117763129noreply@blogger.com