tag:blogger.com,1999:blog-32053362.post7253994066614323469..comments2024-03-18T06:27:51.599-04:00Comments on Not Running a Hospital: Will JAMA ever open up?Paul Levyhttp://www.blogger.com/profile/17065446378970179507noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-32053362.post-19627808460514442812014-03-17T23:55:59.472-04:002014-03-17T23:55:59.472-04:00Veteran of several surgeries, wary of medical indu...Veteran of several surgeries, wary of medical industry, glad to belatedly discover your journal. Just wanted to point out that AMA journal articles are STILL not made available to the public. Perhaps $30/article is considered the same as "free" to the medical profession, but it just isn't.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-77424966662024735972011-06-14T16:42:52.120-04:002011-06-14T16:42:52.120-04:00Another way to say "We make all studies free ...Another way to say "We make all studies free after six months" would be 'we adhere to the Federal Research Public Access Act of 2006,' which mandates that any study funded by NIH be submitted to the open-access PubMed Central. Non-NIH-funded research and older research does not have to be submitted. From this it sounds to me like they are hitting the minimum legal requirement.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-39199702004592294312011-06-12T14:48:32.649-04:002011-06-12T14:48:32.649-04:00I was just made aware of a stopgap measure allowin...I was just made aware of a stopgap measure allowing patients temporary access to journal information, found at the website below:<br /><br />http://www.cautiouspatient.org/blog/item/47-realities-of-medical-care-series-45-of-patients-get-only-partially-treated.html<br /><br /><br />With thanks to Fred Trotter at e-patients.netAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-63123275696685030152011-06-11T16:44:14.068-04:002011-06-11T16:44:14.068-04:00There is real movement for information transparenc...There is real movement for information transparency:<br /><br />http://www.openaccessweek.org/<br /><br />October 24-30, 2011 | Everwhere<br /><br />"Open Access Week, a global event now entering its fourth year, is an opportunity for the academic and research community to continue to learn about the potential benefits of Open Access, to share what they’ve learned with colleagues, and to help inspire wider participation in helping to make Open Access a new norm in scholarship and research.<br /><br />“Open Access” to information – the free, immediate, online access to the results of scholarly research, and the right to use and re-use those results as you need – has the power to transform the way research and scientific inquiry are conducted. It has direct and widespread implications for academia, medicine, science, industry, and for society as a whole."Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-26334091603318998402011-06-10T17:46:49.933-04:002011-06-10T17:46:49.933-04:00You can have my copy - I don't have time to re...You can have my copy - I don't have time to read it anyway! (a copy a week)76 Degrees in San Diegohttps://www.blogger.com/profile/14358630186174729315noreply@blogger.comtag:blogger.com,1999:blog-32053362.post-83693102326241079492011-06-10T17:39:51.315-04:002011-06-10T17:39:51.315-04:00Given that not all wisdom lies in the guild, publi...Given that not all wisdom lies in the guild, public access provides a very important layer of review as well. Consider the excruciatingly limited percentage of health scientists who get funding (%NIH grants), the high percentage of repeat big ticket winners of this lottery, and the nearly incestuous pattern of citations within disciplines. Peer review is like the clinical trial. It is a gold standard only as good as gold can be. Nice to have in your pocket, but put to better use with alloy, contextualization, and the testing of other knowledge.<br /><br />A great tool would be a network map of journals (e.g. Katy Borner's Atlas of Science, MIT) indicating levels of public access. If you get the game, you get citation rates. But what if we value transparency as the ultimate peer review?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-85092217174632742442011-06-10T14:57:51.282-04:002011-06-10T14:57:51.282-04:00Dear Anon 10:21;
I like your idea of a boycott, b...Dear Anon 10:21;<br /><br />I like your idea of a boycott, but I also like my idea of giving out the logon information to patients. While one involves no one reading the publication, the other permits all to read it - and simultaneously subjects the articles to the wisdom of the greater crowd. There are some very smart scientists out there who do not have MD after their name, who I bet could make some very cogent criticisms in letters to the editor.....<br /><br />nonlocalAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-64316573805490946342011-06-10T10:21:39.577-04:002011-06-10T10:21:39.577-04:00So, perhaps the moral decision remains in the hand...So, perhaps the moral decision remains in the hands of the professionals: Do patients come first? First do no harm?<br /><br />As it becomes apparent that public access does not contraindicate business survival, and the strictures on information pose increasing costs for patients and progress in science, scientists and physicians should boycott such publications. There is plenty of great competition out there, and in 2011 there is no excuse for secrecy in science.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-10063957777376006682011-06-10T09:53:32.276-04:002011-06-10T09:53:32.276-04:00Another thing they could do is make their journal ...Another thing they could do is make their journal available to patients at a discount, like $25 per year. The old way cannot persist; access to life saving information is too critical. Visit e-patients.net to see a post about a patient whose physician was 10 years behind on the link between Parkinson's disease and melanoma. Patients now have to protect themselves. Why defend the status quo?<br /><br />nonlocalAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-61494226916216478082011-06-10T08:40:38.208-04:002011-06-10T08:40:38.208-04:00Maybe Jon, but if we take her at her word, why wou...Maybe Jon, but if we take her at her word, why wouldn't you want to make it easy?Paul Levyhttps://www.blogger.com/profile/17065446378970179507noreply@blogger.comtag:blogger.com,1999:blog-32053362.post-26013559247127855312011-06-10T08:13:16.872-04:002011-06-10T08:13:16.872-04:00Is it possible that there is a way to get it for f...Is it possible that there is a way to get it for free after six months, but they make that less apparent than the subscription request? A well known IT site does something like this, www.experts-exchange.com, where they make it *look* like you need to sign up, but if you scroll down far enough, the answers are present for free. Not saying JAMA does that, but maybe there's a link that's not obvious somewhere that leads to the article, making her statements technically true, but unintuitive?jonmcrawfordhttp://www.linkedin.com/in/jonmcrawfordnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-70743001616868216892011-06-09T18:38:20.105-04:002011-06-09T18:38:20.105-04:00Hmm, maybe I should ask for royalties! I wonder i...Hmm, maybe I should ask for royalties! I wonder if they have sold any copies.<br /><br />The answer is that if JAMA wants to have more of an influence on public policy matters, it would do better to make some articles public. That's what NEJM does.<br /><br />It is all a matter of degree, right?Paul Levyhttps://www.blogger.com/profile/17065446378970179507noreply@blogger.comtag:blogger.com,1999:blog-32053362.post-66594258146933173672011-06-09T18:18:55.217-04:002011-06-09T18:18:55.217-04:00The model of charging for access to works of inter...The model of charging for access to works of interest does not seem unusual. For example, the Harvard Business Review continues to ask for payment to read the "Nut Island Effect" an article you penned over 10 years ago and have referred to in this blog. Certainly that piece has generalizable interest. What framework should be used in deciding which writings should be freely available?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-4164470278662909822011-06-09T15:42:14.710-04:002011-06-09T15:42:14.710-04:00The excuses of Dr. DeAngelis do not withstand any ...The excuses of Dr. DeAngelis do not withstand any reasonable criticism. Patients and other need to have timely access to recent research. MDs should, by themselves, free the access to their articles by publishing them in blogs, websites, anywhere or as suggested above by publishing user name/password. <br /><br />As far as I am concerned, if an article I need is blocked by publishers, I write to the authors and ask for a copy. No one has so far refused.... It does take time but it's a solution to the problem...kgaponoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-53612266274298903102011-06-09T15:17:27.940-04:002011-06-09T15:17:27.940-04:00What's more, I receive a challenge to enter su...What's more, I receive a challenge to enter subscriber information or purchase the article for the 1997 article "Thyroid Storm," mentioned in today's WIHI talk by Dr. DeAngelis. Hard to believe JAMA does not provide the full text of an article 14 years old to the general public!<br /><br />A Medical WriterAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-32053362.post-60852511536793172972011-06-09T15:15:07.070-04:002011-06-09T15:15:07.070-04:00Excellent question and poor answer, Paul. You just...Excellent question and poor answer, Paul. You just gave me an idea - what if those of us that were subscribers to medical journals (I subscribe to NEJM) published our usernames and passwords on Facebook or somewhere for anyone to use?? If I'm paying the $$ anyway, then other people may as well get the benefit. And maybe 'massive resistance' of this sort will challenge the journals to rethink their policies.<br /><br />I challenge other MD's to do this. I think I will do it right now.<br /><br />nonlocal MDAnonymousnoreply@blogger.com